13 December, 2023
The ERS Clinical Research Collaboration Child BEAR net has recently published a study in the Lancet Respiratory Medicine that is the first core outcome set (COS) for paediatric bronchiectasis.
The Child-BEAR-net: Children’s Bronchiectasis Education (BE) Advocacy and Research Network Clinical Research Collaboration (CRC) was launched by ERS in 2021. The CRC aims to create vital infrastructure to progress research and collaboration in paediatric BE and advance this neglected field, raise awareness, encourage an evidence-based approach and improve the lives of the many children at risk of, or affected by, bronchiectasis.
The paper, A core outcome set for bronchiectasis in children and adolescents for use in clinical research: an international consensus study, is a patient-focused, international consensus-derived core outcome set. It was based on a systematic review and surveys from 562 parents and patients and healthcare professionals from 58 countries and consensus meetings that include parent and patient advisory groups.
The use of this international consensus-based COS ensures that studies have consistent, patient-focused outcomes, facilitating research worldwide and, in turn, the development of evidence-based guidelines for improved clinical care and outcomes.