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The Child BEAR net (Children’s Bronchiectasis Education Advocacy and Research Network) clinical research collaboration (CRC) was launched by the European Respiratory Society (ERS) in 2021. There is a large knowledge gap in the field of paediatric bronchiectasis (BE), a neglected chronic disease. Paediatric bronchiectasis is particularly important as optimal management can reverse clinically compatible, radiographically defined bronchiectasis, thus preventing progression to severe bronchiectasis in adults. This CRC builds upon its ERS Clinical Practice Guideline for managing children/adolescents with BE, completed recently with substantial input from the European Lung Foundation (ELF) . The CRC will create vital infrastructure to progress research and collaboration in paediatric BE and will advance this neglected field, raise awareness, encourage an evidence-based approach and improve the lives of the many children at risk of, or affected by, bronchiectasis.
Child-BEAR-Net has an eight-member steering committee, a scientific manager and an additional 15 core members, composed of clinician researchers, experts in translational research, young investigators and patient representatives.
If you are interested in more information about Child BEAR net or would like to join the network, please contact firstname.lastname@example.org.
Follow the progress of Child BEAR net on twitter: @Child_BEAR_Net.