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Since the start of the COVID-19 pandemic, numerous COVID-19 research initiatives have been launched. To date, these strategies have primarily focussed on the acute infection and not the long-term consequences. The ambition of the CRC END-COVID is to study the consequences of COVID-19 infection, particularly in those who have been hospitalised. To maximise the impact of the effort invested in clinical data collection and research and to minimise duplication of work and offer better and faster answers to medical needs, END-COVID aims to align and, where possible, merge different national initiatives in Europe studying the long-term effects of COVID-19 in those post-hospitalisation survivors. END-COVID will study the impact on those with premorbid lung conditions and the onset of de novo lung disease and co-morbidities.
The long-term vision of the END-COVID CRC is to build an integration platform that would allow any researcher to have access to the data to answer COVID-19 related research questions, once approved by END-COVID CRC Steering Committee and Data Controllers.
The specific aims of the END-COVID CRC during its two-year time frame are as follows:
The END-COVID CRC Steering Committee includes representatives from various assemblies, including among others: ‘Infectious disease’, ‘Airway diseases’, ‘Interstitial Lung Diseases’, ‘Intensive care’, ‘Rehabilitation’ and ‘Thoracic Oncology’ as well as a representative of the ERS Core Management Group.
The larger management team includes various key stakeholders:
If you are interested in more information about END-COVID CRC or would like to join the network, please contact scientific@ersnet.org.
In August 2021, a survey was conducted on COVID-19 follow up programmes across Europe within the stakeholders of the ERS CRC END-COVID and the members of Assembly 12 “Interstitial lung diseases”. The results are published below: