Pulmonary hypertension (PH) is a rare condition that affects about 15 to 50 people out of every million. Although it cannot be cured, in the past decade great improvements have been made in the understanding of PH, but there remain many opportunities for further research in this area.
Ahead of the upcoming World PH Day (5 May), the MEP Lung Health Group will host the free webinar, “Accelerating EU research for rare diseases – the case of pulmonary hypertension”.
The webinar features presentations that showcase how EU research has led to successes in the field of PH. The presentations will be followed by a virtual roundtable discussion, wherein expert panellists will discuss how to further accelerate EU research on rare diseases, to strive for more breakthroughs in this area.
This event is jointly organised by ERS and PHA Europe. It is endorsed by the European Lung Foundation, EURORDIS and ERN-Lung.
- MEP Maria da Graça Carvalho (EPP, Portugal)
- MEP István Ujhelyi (S&D, Hungary)
- Carlos Robalo Cordeiro, ERS Vice President
- Marc Humbert, ERS President Elect
- Christina Kyriakopoulou, Team Leader for Rare Diseases and Biotools, DG Research
- Maleen Fischer, patient, PHA Europe
- Marion Delcroix, Chair of ERS Assembly 13 (Pulmonary vascular diseases)
- Gabor Kovacs, ERS clinical research collaboration PEX-NET