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The SPACE (Severe Paediatric Asthma Collaborative in Europe) clinical research collaboration was launched by the European Respiratory Society (ERS) in 2015. The core project is the creation of a multicentre registry of paediatric patients with severe asthma. It was started on the initiative of the European Medicines Agency, which observed a lack of participation of children and adolescents with severe asthma in trials of biologics, leading to reduced access to these drugs for paediatric patients. Severe asthma differs in children and adults – including mechanisms, patterns of inflammation, and pathophysiology. Thus, we cannot automatically extrapolate clinical characteristics, phenotypes, quality of life or unmet needs from severe asthma in adults to children with apparently the same clinical disease.
The SPACE registry is aimed to record data of at least 300 children aged 6-17 with severe asthma, recruited in more than 20 specialised centres across Europe. It aims to facilitate multidisciplinary collaborative research in paediatric severe asthma.
The SPACE registry of children with severe asthma provides the opportunity:
At the core of the network is the SPACE Steering Committee, which comprises the two CRC chairs and two SPACE members.
The Stakeholder board is composed of different stakeholder groups composed of clinician researchers, experts in translational research, young investigators and patient representatives.
If you are interested in more information about SPACE or would like to join the network, please contact email@example.com.