The recent development of disease-modifying treatments in spinal muscular atrophy type 1 has shifted patients’ respiratory management from palliative to proactive. New diseases-centered guidelines and consensual management are needed to provide these patients’ with optimal respiratory care.
Educational aims
- Evaluation of SMA patients’ respiratory status
- Early identification of alveolar hypoventilation
- Respiratory physiotherapy technics available for SMA patients (and when to implement them)
- How respiratory outcomes were chosen in clinical trial, and what respiratory benefits to expect for SMA patients
Topics
- Respiratory management of SMA patients;
- Respiratory physiotherapy;
- Non-invasive ventilation;
- Nocturnal hypoventilation;
- Respiratory outcomes in clinical trials.
Format
Three 15-min lectures followed by 15-min interactive discussions/questions:
- Diagnosis and management of hypoventilation in SMA
- Respiratory physiotherapy for SMA patients
- Respiratory outcomes in clinical trials
Learning outcomes
Following this webinar, participants will be able to evaluate SMA patients’ respiratory status and identify early signs of hypoventilation. They will also be able to decide on the most appropriate respiratory physiotherapy management for SMA patients. During this webinar, we will also discuss respiratory outcomes and what respiratory benefits clinicians can expect (or not) from new disease-modifying treatments.
CME credit
An application for accreditation of this webinar has been made to the European Board for Accreditation in Pneumology (EBAP) for 1 CME credit per 1-hour attendance. If accredited, the CME credit will be granted upon attendance of at least 60 minutes during the live webinar only.
What is a webinar?
A webinar closely simulates a lecture-based teaching experience. The speaker can interact with the audience, just as in a classroom setting. During the webinar, you will be asked to share your opinion on issues related to the topic using interactive polls.
All participants will be able to hear the lecturer and see the slides throughout the presentation. As a participant you will be able to pose questions or discuss ideas with the other participants via the text chat facility and the speaker will respond to the questions via the microphone.
Login guidelines
More information will be communicated in due course.
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- Please log in to the webinar 20 minutes before it is scheduled to commence. If you have any technical difficulties whilst trying to log in or during the session please contact e-learning@ersnet.org.
- Check Central European Time.
- To achieve the best quality, we recommend to avoid downloading anything from the internet during your connection to the lecture and stopping all other programmes.
- Please also ensure that your audio settings are not set to mute and adjust the volume to a comfortable level.
Diseases / methods
- Paediatric respiratory diseases
- Sleep and breathing disorders
Target audience
- Clinicians (paediatric pulmonologists, pulmonologists, paediatric neurologists)
- Physiotherapists
- Trainees