Pulmonary fibrosis is a devastating form of ILD and around 20% of patients have a genetic form of pulmonary fibrosis which associates with worse survival, comorbidities, and increased risk for disease in family members. Recognition of these patients and genetic analysis informs on diagnosis, prognosis, risk for comorbidities, treatment response and disease risk assessment in relatives. A patient, relatives and pulmonologist’s survey conducted by the ERS taskforce members showed a high need for education among patients and pulmonologists. The ERS taskforce TF 2019-10 Genetics in pulmonary fibrosis provided a statement to inform clinicians on current knowledge and expert practise. All what care professionals need to know on genetic pulmonary fibrosis will be presented in this webinar.
Educational aims
The webinar will explain what genetic pulmonary fibrosis is, informing the audience on:
- The patient’s trajectory: experiences and needs
- Epidemiology, pathogenesis (genes involved) and phenotype of genetic pulmonary fibrosis
- Prognosis, treatment options and expected comorbidities in patients with genetic pulmonary fibrosis
- Relatives at increased risk for disease and screening for early disease
Topics
- How to recognize a patient suspected of genetic pulmonary fibrosis?
- Which patients may benefit from genetic testing?
- Management of relatives at risk: genetic testing and/or physical screening?
Learning outcomes
Following this webinar, participants will be up to date on cause, frequency, phenotype and management of genetic pulmonary fibrosis which enables them to recognize putative patients with the disease and optimize their management.
Format
The 1-hour webinar will start with an introduction by the chair, followed by an interview of the chair with the patient using pre-phrased questions. Thereafter a short presentation of the survey results detailing current use and needs for genetic pulmonary fibrosis. Then a case presentation as the start of a lecture on the genetic and phenotypic spectrum of the disease and a case presentation followed by a lecture on the management of genetic pulmonary fibrosis in patients and their relatives. Finally, there will a discussion with discussants and the patient representative lead by the chairs using pre-phrased questions on the subject.
CME credit
An application for accreditation of this webinar has been made to the European Board for Accreditation in Pneumology (EBAP) for 1 CME credit per 1-hour attendance. If accredited, the CME credit will be granted upon attendance of at least 60 minutes during the live webinar only.
What is a webinar?
A webinar closely simulates a lecture-based teaching experience. The speaker can interact with the audience, just as in a classroom setting. During the webinar, you will be asked to share your opinion on issues related to the topic using interactive polls.
All participants will be able to hear the lecturer and see the slides throughout the presentation. As a participant you will be able to pose questions or discuss ideas with the other participants via the text chat facility and the speaker will respond to the questions via the microphone.
Login guidelines
More information will be communicated in due course.
- Please log in to the webinar 20 minutes before it is scheduled to commence. If you have any technical difficulties whilst trying to log in or during the session please contact e-learning@ersnet.org.
- Check Central European Time.
- To achieve the best quality, we recommend to avoid downloading anything from the internet during your connection to the lecture and stopping all other programmes.
- Please also ensure that your audio settings are not set to mute and adjust the volume to a comfortable level.
Diseases / methods
- Interstitial lung diseases
Target audience
- Clinicians
- Trainees
- Researchers
- Geneticists
- Patient advocates