MEP Lung Health Group: A stronger European response to rare diseases – the case of pulmonary hypertension

Overview

This event was hosted by the MEP Lung Health Group – an informal platform for policymakers, health professionals and patients to identify the potential EU policy measures aimed at improving lung health. The Group’s secretariat is supported by The European Respiratory Society and European Lung Foundation.

This event, streamed live from European Parliament in Brussels, and chaired by ERS President Marc Humbert, brought together experts to discuss European action on pulmonary hypertension.

Chairs

  • Marc Humbert (ERS President)
  • MEP István Ujhelyi (S&D, Hungary)

Speakers

  • Jose A. Valverde, Policy Officer, Unit B3. European Reference Networks and Digital Health, Directorate-General for Health and Food Safety
  • Marion Delcroix, Director, Centre of Pulmonary Vascular Diseases, University Hospitals of Leuven, Leuven, Belgium
  • Gergely Meszaros, Project manager, PHA Europe
  • Adam Torbicki, Professor, Center for Postgraduate Medical Education, ECZ-Otwock, Poland
  • Gabor Kovacs, Assistant Professor, Division of Pulmonology, University Clinic for Internal Medicine, Graz, Austria
  • Laurent Godinas, Assistant Professor, Department of Respiratory Diseases, University Hospitals Leuven, Leuven, Belgium
  • Eva Otter, President, PHA Europe
  • MEP Tomislav Sokol (EPP, Croatia) – TBC

Format

  • Presentations
  • Panel discussion

Topics

The speakers presented on the following themes:

  • The role of the European Commission in the field of health and the EU Health Programme
  • Pulmonary hypertension, rare diseases and EU policies
  • Introduction of the Call to Action position paper
  • Access to treatment
  • Encourage clinical research and innovation
  • Improving screening and raising awareness
  • Psychosocial support

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