ERS hosted this year's annual ERS Presidential Summit in Athens, Greece on 19-20 June entitled 'Redesigning the future of patient care'.
Ahead of the Summit, a cohort of patients from the European Lung Foundation’s patient organisation network responded to a survey that asked about what currently affects their care. The Summit agenda was developed to address the needs and trends identified in the patient survey, through multi-stakeholder discussion, breakout sessions and patient testimonials.
The outcomes from the discussions held at the Summit aim to pinpoint potential solutions to the current barriers, and will be developed into advocacy points for the future of patient care and published in the European Respiratory Journal as a special EU lung corner.
Scene setter: Future threats and current solutions to healthcare
- Mina Gaga – ERS President
- Vytenis Andriukaitis – EU Commissioner for Health and Food Safety
- Patient film – Asthma and COPD
The patient perspective
- Isabel Saraiva – European Lung Foundation Chair – Presentation of the patients' survey
- Dimitris Kontopidis – Cystic fibrosis patient advocate, Greece – A national perspective
Theme I: How can multidisciplinary and specialist care improve patient outcomes?
- Marta Almagro – Bronchiectasis patient advocate – Patient view on multidisciplinary/specialist teams and care
- Ioanna Tsiligianni – Assistant Professor, Clinic of Social and Family Medicine, Univesity of Crete – The need for a first point of contact to guide patients through care – and when to involve a specialist
- Stelios Loukides – Pulmonologist, National and Kapodistrian University of Athens Medical School – Specialist care - improving national and individual outcomes (including cost-effectiveness)
- Patient film – The patient view on multidisciplinary care
Theme II: Multi-morbidities and the ageing population – what are the best solutions for care?
- Josep Roca – Director of the Lung Function Unit, Hospital Clinic, Spain – How can digital health solutions help improve the lives of older patients?
- Anita Simonds – Professor of Respiratory and Sleep Medicine, National Heart and Lung Institute, UK – Palliative and end of life care
- Matt Cullen - Idiopathic pulmonary fibrosis patient advocate, Ireland – The patient view
- Patient film - The impact of ageing and loss of health
Theme III: How can we finance access to new advances in medical care? How do we deal with growing health inequalities?
- Laura Fregonese – Scientific Officer, European Medicines Agency – Fostering development and access of innovative treatments: a regulatory perspective
- Theodoros Paschalis – Medical Physicist, National Organisation for the Healthcare Services Provision (EOPYY), Greece – Tackling poverty and inequalities in Greece: how to guarantee access to healthcare and medicines for all?
- Patient film – Severe asthma
- Kostas Athanasakis – Health Economist, Department of Health Economics in the National School of Public Health, Greece
- Claus Justus – Group Leader Global Scientific Operations Respiratory, Boehringer Ingelheim
- Kostas Kostikas – Worldwide Brand Medical Director Respiratory, Novartis
Theme IV: Lung cancer – prevention and early diagnosis
- Constantine Vardavas – ERS Director of Scientific Relations with the EU, Greece – Tackling lung cancer risk factors
- John Field – Professor of Molecular Oncology, University of Liverpool, UK – Screening and diagnostic-therapeutic sequences in lung cancer (1/2)
- Sebsastian Schmidt – Siemens – Screening and diagnostic-therapeutic sequences in lung cancer (2/2)
- Stefania Vallone – Lung Cancer Europe President – A policy perspective: the need for EU guidelines on lung cancer screening
Theme V: The future of lung cancer treatment and care I
Molecular characterisation of tumours and companion tests
- Joanna Chorostowska – Professor of Respiratory Medicine, National Institute of Tuberculosis and Lung Diseases, Poland – The need for accurate and accessible diagnosis
- Thierry Berghmans – Head of Thoracic Oncology Clinic, Institut Jules Bordet, Belgium – Setting up programmes for accurate tissue sampling and diagnosis
- Janette Rawlinson – Lung cancer survivor and patient advocate, UK – What patients want in the diagnostic process
Theme VI: The future of lung cancer treatment and care II
- Benjamin Besse – Head of Thoracic Tumour Board, Gustave Roussy Institute, France – Understanding the role of personalised medicine in lung cancer treatment
- Anne-Marie Dingemans – Pulmonologist and pulmonary oncologist, The Netherlands – The added-value of multidisciplinary care for lung cancer patients
- Merel Hennink – Lung cancer patient advocate – Experiences on treatment: the patient perspective
- Patient film – Lung cancer